Taylor Macut - Fall 2006

Hi, my name is Taylor Macut. My family and friends call me Tay. I’m 14. I was born on September 25, 1992, in Harrisburg, PA. I have Apert syndrome and have had about 10 surgeries so far, all at CHOP in Philadelphia. Hopefully, I don’t have too many more in the future!

I live with my dad, step mom (but she’s like a real mom to me), and my brother Keaton. He is 16 years old and bugs me a lot. Sometimes he’s very funny but most of the time he’s annoying. My grandparents (Nanner and Bop) live close to us and I like to visit them a lot.

I like to swim and ride my bike with my neighbors and play video games. I sometimes beat my brother in Mario Kart Double Dash. I also like playing with my friends, and eating— especially macaroni and cheese.

I like any kind of music except rap and country. I  really like The Beach Boys. I also go to see a lot of musicals with my parents. They even took me to New York City to see “Wicked.” We went backstage after the show, and I got my program signed by all the cast!

I also like to play sports and play soccer, basketball, tennis, golf and football with my friends. I’m also a fan of the Philadelphia Eagles.

School is OK. I’m in eighth grade at C.D.East Middle School. Next year, I will go to high school, where my brother will be a senior. When he goes to college, I will get his room.

When I grow up I want to be a chef. I like to cook, and my dad lets me help make dinner at home.

I have to go and make sure all of my homework is done for school. See you all at the next retreat!

If you would like to share your story with CCA, please send an email to Annie Reeves at areeves@ccakids.com. If your story is chosen, with your permission, we will edit and publish it in the CCA newsletter, on the Web site or use it for public awareness programs. Not all stories will be selected.

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